Abstract

Augmentation cystoplasty emerges as a crucial intervention for congenital bladder dysfunction when conservative medical treatments prove ineffective. However, the procedure often leads to chronic complications, necessitating ongoing care, particularly during the transition to adulthood. This study presents a questionnaire-based analysis designed to assess the satisfaction and experiences of adult patients who underwent bladder augmentation during childhood or adolescence. A retrospective review of patient records spanning from 1990 to 2017 identified 79 individuals who underwent augmentation cystoplasty, of which 17 consented to participate in the survey. Results revealed a cohort consisting of nine males and eight females, aged 19 to 44, with an average BMI of 24.89 kg/m². Neurogenic bladder associated with medullary dysraphism came up as the primary indication for the procedure. Correlation analysis revealed that the daily frequency of self-catheterization emerged as a key predictor of patient satisfaction during the transition to adulthood. The study underscores the importance of ongoing patient monitoring post-augmentation cystoplasty, asserting that consistent medical supervision enhances long-term success. Notably, patients who exhibit trust in their medical team are more likely to adhere to recommendations, reducing the risk of complications and leading to higher overall satisfaction during the transition to adulthood and in long-term care. These findings emphasize the critical role of patient-provider relationships in optimizing outcomes for individuals who undergo augmentation cystoplasty in their formative years.

Keywords: Augmentation cystoplasty; Congenital bladder dysfunction; Transitional urology